Fibromyalgia. When I was diagnosed with this in 1991, I had never heard of it and when I went to look it up in the Medical Dictionary, it wasn't in there. So I looked it up in Webster's Dictionary, not in there. So I broke the word up: Fibro - any soft tissue in the body; Myalgia - pain. Ok now what? I was also given the diagnosis of Chronic Fatigue Syndrome and I don't remember looking that up, but someone in our church was very sick with this and I could only call her after lunchtime. I got a lot of information from her, one of which is "you are probably going to have to quit working and go on disability." Disability? I'm not disabled, just feel like I have a very bad case of the flu for the past year. I did apply for SSDI and have been since 1992. It actually took 2 1/2 years, but thankfully I had long-term disability to carry us over. Since then I have met many people with this illness, and we all have different symptoms and how we got sick. As Trisha stated, she had a lot of energy to do what she needed and then collapsed. I'm not sure if it's my age (I am older by several years) or am in a relaspe since I had been busy and stressed from the holidays and my son's wedding) but have not been doing much since the end of January. I've been in a lot of pain and am very tired. As a result, I have been very depressed. I have plans that I can't follow through with. Some as simple as going to the bank so I can pay bills. That was today's plan, it's cold and raining and it's not worth going out if I already feel bad. I think I've learned to listen to my body more now than I used to. I plan to go to the bank tomorrow! I have to pay bills!
March 31, 2009 11:24 AM Posted by Vickie - (with help copy and pasting by Trisha)
2 comments:
A very good description of life with fibro.
Vickie, I think you and I could be twins right now!! You worded what I wanted to say so effectively.
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