A couple of good articles

Sorry I haven't posted in so long. Again. The last couple of months have been busy and difficult and I can't seem to find the motivation to do much of anything. It's something I'm working on, so I hope to post more frequently in the near future.

Here are a couple of interesting articles about fibro. Both of them validated some of the odd things I experience so I thought I'd share them.

The following article probably has the best description of fibro that I've read, so far. I was surprised to see difficulty in focusing the eyes listed. I definitely have that, but I hadn't read about it anywhere else. Anyway, I thought this article would be a good one to bookmark to send to anyone who wants to know what having fibro is like. (Or, even if they don't want to know but you think they should :)

http://www.fmnetnews.com/basics-symptoms.php

Here is another one that explains (a little bit) the effect the weather can have on our symptoms. I definitely notice the worsening of symptoms in December and an improvement in April or May when it starts warming up. I also feel it when low pressure moves in. It's good to know this is normal!

http://www.fibromyalgia-symptoms.org/fibromyalgia_weather.html

Does the weather effect you in this way? What about low humidity, does it worsen your symptoms? (I'm just curious - it's very wet here so low humidity isn't something I have much experience with.)

An Interesting Article on Fibrofog

Finally, an article that recommends some medications and supplements that might help with fibrofog! http://www.prohealth.com/fibromyalgia/library/showArticle.cfm?libid=14402&B1=EM021611&slvor=10594.1032735.0.1.0.37055&eid=fibrohaven%40gmail.com

It lists tricyclic antidepressants as possibly making fibrofog worse but it seems like my fibrofog episodes are much less severe since I started taking amitryptiline. Of course, I'm only taking 20 mg and I'm not feeling much of a sedative effect.

I'm certainly willing to try some of the supplements. CoQ10 is expensive but it also helps with fatigue so a round of it might be worth a try.

Another thing I found very interesting about this article is that it talks about how fibrofog might be caused by all the extra signals the brain is receiving because of pain and fatigue. Something I've noticed is that I get brain fog from being somewhere noisy with lots of movement and different things going on. My brain essentially shuts down for the rest of the day after time spent in noisy, busy environments. I wonder if it's the same thing - the brain becoming overwhelmed with too many signals?

Does this happen to you? Have you found anything that helps with it?

From Fatigued to Fantastic - A Book Recommendation

I finally got around to reading From Fatigued to Fantastic by Jacob Teitelbaum, M.D. and I'm very glad I did. Dr. Teitelbaum has treated thousands of fibromyalgia patients and even suffered a bout of CFS/FMS himself so he knows what it's like and, most importantly, believes that CFS and FMS are real conditions. I thought his theories about the causes and/or underlying conditions make a lot of sense and the treatments are very doable and affordable (provided you can find a doctor to prescribe them). He does recommend products that he helped develop but, as he donates all his royalties to charity, I didn't feel like the purpose of the book was to promote his products. Another thing I really like about Dr. Teitelbaum's approach is that he recommends use of both traditional drugs and alternative therapies and he gives an overview of each treatment. The more I learn about fibromyalgia, the more I feel a variety of seemingly subtle and unrelated treatments is going to help more than that one magic pill that researchers can't seem to come up with anyway.

Dr. Teitelbaum recommends a SHIN protocol

S - Sleep: The Foundation of Getting Well

H - Hormonal Support

I - Infections: Destroy Your Body's Hidden Invaders

N - Nutrition: Optimizing Your Body's Ability to Heal

At the end of each chapter, there is a list of questions to answer and directions for marking off the treatments to create your own treatment protocol. Some of the supplements and natural treatments you can start on your own right away. I've been taking the Revitalizing Sleep Formula, Ribose and adrenal support formula and, although I'm still having migraines and flares, I'm feeling much better than I generally do in February.

After reading this book, I feel much better prepared for discussions with my doctor about possible treatments, I feel much more hopeful that I can and will feel better and I feel like I understand how declining hormones - progesterone, estrogen and thyroid - could be what's making my fibro worse.

If you'd like to learn more about any of the From Fatigued to Fantastic products or research, Dr. Teitelbaum's website is http://www.endfatigue.com/. (Just a hint - you can find good deals on some of these products at Amazon.)

Feeling Like Garbage

February is almost upon us and, for me, this means the most difficult time of year has arrived. I feel like garbage every single day. The weird, congested, achy, sick feeling across the middle of my back always flares up this time of year and it's the hardest pain for me to deal with. It doesn't go away when I sit down like my other pains and it's often accompanied by a feeling of sadness. It's a very heavy feeling that makes it very hard to get out of bed in the morning. In addition to that, my legs, hips, shoulders, arms and feet hurt and I'm having daily headaches AND more migraines again. Oh, and fatigue too. I can't forget the fatigue. I live in a split level house and having to go up and down those stairs a dozen times a day is exhausting. I feel like I need to lay down on the landing for awhile to get the strength to make it up the rest of the stairs. It's not fun. I wish I could just go to bed and not get up until this part of the year is over with.

And the hardest part? This could go on for months. Sometimes, I start feeling better in April but often feeling better doesn't start until May. Last year, it was July.

It's very hard to keep a positive attitude when faced with months and months of feeling like garbage. But I am determined  to stay positive and be happy this year. I don't want to be depressed, angry and bitter on top of being physically miserable.

I suppose the first step is to stay in the moment and take it day by day, instead of focusing on months of misery ahead. Maybe I'll feel better sooner this year. I do have some new tools in my fibro toolkit. I bought the The Trigger Point Therapy Workbook and I've had great success in treating my hip pain. I think the weird pain across my back may also be caused by trigger points so I'm working to figure out which ones so I can treat them too. And, I've discovered that doing a short, easy yoga routine every day helps reduce my pain levels.  I've also read some good, hope-inspiring  books about fibro lately which I'll share more about later because I'm tired now, which I'm sure you understand all too well!

Holiday Craziness

My fibro always takes a turn for the worse every December. It's probably a combination of things: the weather growing colder and damper, eating too much sugar, the stress of all the extra things to be done and the lack of time to properly take care of myself. Every year I cut more and more things out of my holiday to-do list and every year I still find myself feeling stressed, out of balance and in pain. 

I decided this year was going to be different. I cut my holiday to-do list down to the bare minimum, I started doing yoga every day, I bought The Trigger Point Therapy Workbook and some massage tools and I was making great progress on working out my trigger points and reducing my pain. Also, I had my new office, a private, quiet place of my own to retreat from the noise and chaos of the kids. My plan for a better holiday season was going great. 

Then, last Friday, the valve under my bathroom sink exploded and both upstairs bathrooms, our bedroom, my office (which is underneath the bathroom) and part of the garage flooded. Since then, we've had these big noisy fans and dehumidifiers running 24/7 and we had to have the bathroom floors, part of our bedroom floor and the ceiling to my office torn out. My whole routine has been turned upside down, nothing is where it should be and every day contractors have to come out and check the drying process or tear something else out. All my self care techniques have been lost in the craziness. I have lost my areas of sanctuary. I have nowhere to go to get away from the TV that all males have to have blasting at all times, whether they're watching it or not. 

Now, it's two weeks until Christmas and I haven't bought a single present, sent a single card or put up a single decoration. Am I feeling healthy, balanced and peaceful like I planned. Hell, no! My mind is so scattered I can't hold it together enough to complete the simplest of tasks and every day the pain creeps back more and more. 

I'm very sad about this. Why does every holiday season have to be like this? It's like since I decided to not participate in all the frenzied craziness, the frenzied craziness just finds its way into my life in another way. 

I might be able to pull it together once the fans are out of here. But that's not going to be today. The guy is here checking them now and he's not unplugging any of them. Now is one of those times that I really, really wish I could be like a normal person, completely not bothered or effected by noise and chaos. But you know how it is with fibro. Every noise is like a rake running across every nerve in your body. And, because of the fog, having things out of their place makes everything that much more difficult. Operating on auto pilot when your mind has checked out just isn't possible under these circumstances. 

So, once again, I find myself wishing the holidays would just be over already so there would be less to deal with. And I don't want to feel that way! Really, truly I don't. 

The Depressing Truth about MSG

First of all, I apologize for not posting for so long again. I've been in a creative funk lately. I'm afraid that the cognitive impairment that comes along with fibro has made me into a worse writer than I was before. I can't remember how to use commas most of the time, I use the same words over and over and I can't remember what some words mean. Also, I can't seem to stay focused on my topic or make the points I want to make. *sigh* I really have my doubts about whether I'll every be able to achieve my dream of writing and publishing a book, thanks to stupid fibro.

Anyhow, while I was already wallowing in these depressing thoughts, I ran across a couple of websites about MSG. Let me tell ya, this did nothing to improve my feelings of hopelessness!

I've long heard that MSG and artificial sweeteners, particularly aspartame, are bad, bad, bad and should be avoided but I never did any research to find out why. The immediate and intense pain that followed the consumption of aspartame was enough to convince me that I should stay away from it.  Even just a small amount of aspartame leaves me with a horrible headache and intense "phantom" pains in my extremities. The effects of MSG aren't as dramatic for me though. Sometimes I eat it and seem to be just fine. Other times I feel like it works with salt to make me retain water, feel generally yucky all over and have aching in my hips, shoulders and joints.

I finally ran across an article that said that aspartame and MSG are both excitotoxins that act on the nervous system. Now, I'm no doctor or scientist, but knowing that my nervous system is already overexcited and out of whack, avoiding anything called an excitotoxin seemed like a good idea. I did my best to avoid items that had MSG listed as an ingredient. But, when I'm in my PMS food craving stage, it seems like I actually crave food that has MSG in it, such as cheese flavored potato chips.

And, unfortunately, my willpower was very weak during my last PMS food craving stage and I gave in to it. I ate some Sour Cream and Cheddar Ruffles and I've been paying for it for almost two weeks now. I puffed up with fluid that just won't go away and I'm having terrible aching in my hips and shoulders and my arms ache and go to sleep almost every night. Plus, I feel...polluted, like there is gunk in between all the cells of my body. This prompted me to do some more research on MSG.

These are the two websites I visited: http://www.msgtruth.org/ and http://www.msgmyth.com/

From what I read, it doesn't seem like my reaction to MSG is typical. What was depressing about it though is the list of foods to avoid. (Found here:  http://www.msgtruth.org/avoid.htm )  Food companies are putting MSG in everything! Pretty much every time we eat we're poisoning our body and nervous system.

Upon first reading this information, I wasn't sure whether I should just lay down and die because I could never survive on nothing but brown rice and organic veggies (that's mostly whats on the elimination diet at msgtruth suggests) or, just drown myself in a bag of Sour Cream and Cheddar ruffles because there's no way to avoid this stuff anyway.

After reflecting on this for a day or two, I decided to print out a list of all the hidden names of MSG and avoid foods that have them. The website says that all milk except whole milk has MSG of some form but my Organic Valley nonfat milk doesn't list MSG by any name so I'm going to trust they don't put it in there. Maybe this is naive of me but I think a moderate approach to this MSG thing is probably best. Trying to avoid every food that might have it because some website says so seems a bit too extreme for me.  I'm for sure going to try to large amounts of it which, sadly, means not eating out often. Applebee's and Taco Bell were two places suspected of using a lot of MSG and I have noticed I sometimes feel yucky after eating there, even when I have something relatively healthy at Applebee's.

Below is the list of the hidden names of MSG that contain the highest amounts. I recognize a lot of ingredients on products that I thought to be safe!

MSG	Gelatin	Calcium Caseinate
Monosodium glutamate	Hydrolyzed Vegetable Protein (HVP)	Textured Protein
Monopotassium glutamate	Hydrolyzed Plant Protein (HPP)	Yeast Extract
Glutamate	Autolyzed Plant Protein	Yeast food or nutrient
Glutamic Acid	Sodium Caseinate	Autolyzed Yeast
Vegetable Protein Extract	Senomyx (wheat extract labeled as artificial flavor)

What about you? Do you noticed reactions to aspartame and MSG? How do they affect you?

This Rollercoaster called Fibromyalgia...........or is it just life???

Sometimes I wonder if all that I go through is mostly from the fibromyalgia or if it is just life itself. I mean I never really have "highs" but my lows are pretty far down there. Sure, depression is a part of it. How can it not be when you feel like crap all the time? But there's more to it than that. So much more. For example, some days I can get out of bed, walk to the living room or kitchen, study a little maybe or just chill out. Other days I'm in so much pain that I can't EVEN get out of bed and if I do make it to another room, that's as far as I'm going for the rest of the day. Pain is my main reason for these issues. It's relentless, unyielding and downright heartbreaking. I realize that "if I'd just exercise more I'd feel better altogether", but that's a heck of a lot easier said than done. Especially when you can't move because of the horrible pain you're ALREADY in. Don't even get me started on the pain I feel when I do exercise. Well I say exercise, it's really nothing more than stretching or walking. And most of my walking is done at places that are air conditioned like Walmart or the mall. Who am I kidding.........I can't go to the mall and walk, my back is far too bad for that. So I walk in Walmart as far as I can and then have to get a scooter to take me out of the store and to the car.
But is any of this actually caused from the fibro? I mean would I be in this condition even if I DIDN'T have fibromyalgia? I guess we'll never know because it's not like I can get rid of any of the conditions I have. Fibro, AS, Sjrogens, Back pain, etc., etc., etc..........
I wish I could snap a finger and everything be ok again. Oh that's right..........it's never been ok. I've always had these symptoms, just not this bad. For those of you who suffer right along there with me, I feel your pain..........quite literally! I feel so bad for those people who say that their worst symptom is the fibro fog. I really do. It's horrible. But sometimes I wish that my fibro fog would block my pain. Instead it's as if I'm lost in a mindless, worthless issuance of pain from head to toe and deep within to my Psyche. What to do? What to do?
Am I ever positive? Rarely I believe. And I ramble on and on, don't I? Well, I'll just blame it on the fibromyalgia.........again! But sad to say, it's probably the true cause.
I'll never give up though. I've got too much that I want to accomplish somehow. Even if it's just from my bedroom or recliner. How's the saying go, "What doesn't kill us, only makes us stronger!"